CFC: Giving at the Workplace for Federal Employees

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CFC #11583

Since 2007 Ezer Mizion has been chosen as a participant in the U.S. government program’s Combined Federal Campaign that offers federal employees the opportunity of making contributions to non-profit organizations by payroll deductions. Continue reading CFC: Giving at the Workplace for Federal Employees

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Because of You!

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August 2018 – Bone Marrow Donor Registry

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ACTIVITY SUMMARY
22 transplants, 15 from donor pools
2,909 total transplants
914,586 members in registry

Transplant Countries
France, Germany, Israel, Italy, UK, USA

Donor Pool Countries
Canada, Israel, Mexico, UK, USA Continue reading Because of You!

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A Thank You Note from Italy

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Italy is one of many countries around the globe whose oncology clinics contact Ezer Mizion to facilitate the transplant that will save the lives of Jewish patients.

Dear Sirs,

My name is Annalisa T. I am writing from Italy to thank with all my heart the Israeli donor who will try to save the life of my husband Mr Luca B: he will receive a bone marrow transplant between the end of April and the beginning of May at the hospital of Santa Chiara in Pisa, Italy. He is fighting, since May 2017, against a LLA (Leukemia). Continue reading A Thank You Note from Italy

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Vorkanash

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Children’s matching games are fun but genetic matching can save a life!

She played matching games when she was a child. True, she wanted very much to win but losing wasn’t the end of the world. Now she is thirty. And losing this ‘matching game’ would be the end of her world… the end of her life.

She had been experiencing strong back pains for several months. When the pain intensified, she visited her doctor. Tests revealed that she had lymphocytic leukemia. Radiation and chemotherapy were not enough. Due to the aggressive character of the illness, she would have to have a stem cell transplant asap.  Within a few, short weeks! “We are in a race against time,” explained Dr. Itai Levy, head of the Hematology Department in Soroka Hospital.

Her name is Vorkanash. Continue reading Vorkanash

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Because of You My Children Have an Abba (Father)

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Success of a bone marrow transplant hinges on genetic matching

Isn’t every child supposed to have both an Abba and an Ima (father and mother)? Two year old Naomi and her baby brother almost didn’t. Now their mother stood there in tears of joy when she met Aryeh. “Because of you, my children have an Abba,” she cried over and over again.

Who is Aryeh? We’ll let Abba tell that story. Continue reading Because of You My Children Have an Abba (Father)

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Building a Future

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building a future with lego

Love at first sight, that’s what Maor Cohen felt when he got his first Lego set at age five. “My Mom came home from a visit in Tel Aviv, the ‘big city,’ with a humongous Lego set that must have cost half her monthly salary. You have to understand that back then, in the beginning of the 1980’s, this was no trivial matter. I was so excited that I went to sleep at night hugging the box and the next day I couldn’t wait to come back from preschool and play with it.”

“From that moment, which remains vivid in my heart more than thirty years later, I never stopped developing my hobby. Every birthday present was Lego, and every bit of money I saved up as a child remained in my piggy bank until enough accumulated to buy a new set. I lived at the time in Yavneh and I would ride my bicycle all the way to Rechovot in order to buy Lego and save the cost of a bus ticket.”

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Fighting cancer with lego

Throughout his youth, Cohen never abandoned his hobby. But, of course, as he matured, his focus turned to adult occupations. He served in the army, completed an officers’ course, and today, after finishing his academic studies through the army, is serving as a Major in the Manpower Department.

One day, he recalls, after realizing that he had accumulated in his home an unimaginable amount of Lego, worth hundreds of thousands of shekels, he decided that it was time to pass the pieces on to somebody else who would enjoy them. “I wanted to do something good with the Lego. I turned to my friend, Rabbi Eitan Eckstein, who suggested that I donate the collection to Oranit, Ezer Mizion’s Donald Berman Rehab Center for Support of Cancer Patients and their Families.

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Taking a vacation from cancer.

When I arrived at Oranit, my plans changed. Drastically.  “I came there intending to simply donate the Lego and go my merry way. Oranit staff had a different idea. “Suppose you keep the Lego and use it for a club, showing the kids how to use it. You’ve got the skills. You’ve got the know-how. You could accomplish so much. You could put life into those kids (and maybe even adults). Dealing with cancer is frightening. It’s depressing. Having a project like Lego to look forward to would work wonders.”

“They were so convincing that I tried giving the workshop that very day. I recall hesitantly entering the playroom with a few pieces of Lego and three children and we started building. Well, it worked. The kids loved it.  Every week, the number of kids increased, and today there are almost thirty children participating.

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The LegoMan: He stoops to conquer

From that moment five years ago, Maor Cohen has been running the Lego Club in Oranit on a volunteer basis. With time, the project expanded. Others volunteered to assist him. Nir Solomon, who served as Cohen’s brigade commander in the past and is now retired uses his free time help Maor run the club. Four other volunteers also come regularly. Even Maor’s immense collection has its limits but many have been fascinated by the project and offered to help finance new Lego sets.  Maor’s brother is one of these. “He was very excited by the idea and asked to donate money so that I could buy the kids Lego as a gift. That would enable them to have Lego not only during the club time but also at home and with them during their treatments.”

Neither sun, nor rain, nor the security situation can deter the energetic Lego man. “The club is now in its fifth year, and it takes place once a week, no matter what. At most, I push it off a day, because I know that the child and his family are waiting for me. In addition to the club, I also make the rounds in the Oncology wards of the hospitals 3-4 times a week and build with the hospitalized children.”

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Fighting the fear of cancer with plans for the future

Why Lego? “First of all, Lego is great fun. I also think that it is especially important for these kids, because with Lego, there is a feeling of continuity. All that planning gives them a sense of a future.

Dr. Bracha Zisser, Director of Oranit, explains that Oranit was founded in order to relieve patients and their families during the difficult period of treatments. “We operate as a guest house that enables families to sleep over in the Center of the country near treatment centers to avoid the long, grueling hours of traveling. We also organize trips and social activities. In addition, we provide many forms of therapy for both patient and his family. We are constantly expanding our activities in order to enable every person, the patient or his family member, to connect with activities that speak to him.

Maor has got to know Oranit and its staff over the years.  “Oranit is an amazing place. They provide support in the most difficult moments, both to children who are sick and to children with a sick parent, and actually to the entire family, in the knowledge that the family is the circle surrounding the child.”

If you’d like to join the LegoMan in his humanitarian work, just click here and type lego into the memo field.

 

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When ALS Robs Its Victim of Every Skill He Had

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Communicating via Ezer Mizion AAC device

We tend to take our abilities for granted. Scratching a mosquito bite, calling out to a friend across the street, running for a bus, licking an ice cream cone…these are all simple daily activities until one finds he no longer is capable of performing these previously effortless actions.

Muscular movement is controlled by the neurological system. Motor neurons ‘tell the muscles what to do’. But if they don’t? That is when we begin to realize just how complex our bodies are. A person finds he can no longer perform actions that have been part of his life since infancy.

This is what happens in ALS. The motor neurons are gradually lost and the muscles they control become weak and then non-functional.  ALS stands for amyotrophic (without nourishment to muscles) lateral (affecting the side of the spinal cord) sclerosis (the hardened nature of the spinal cord). Its onset is gradual and, at first, the symptoms are merely annoying: dropping things, tripping, perhaps slurred speech. Slowly, other muscles become involved including those that help us breathe. Up until five years ago, life expectancy was short with death often due to respiratory failure and lack of ability to ingest nutrition but due to recent technological advances in prolonging life, some ALS patients can now live for decades.

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Reuven maintains his connection to his world using Ezer Mizion AAC equipment despite the ravages of ALS

The question then arises regarding the quality of life of these patients. A typical end stage Amytrophic Lateral Sclerosis patient is not mobile at all. He lies in his bed or recliner, unable to lift his arm to reach for a tissue, unable to swallow food, unable to ask for a drink. He is completely dependent on his caretaker for every need. Continue reading When ALS Robs Its Victim of Every Skill He Had

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A Special Yes

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Summer camp for Special Needs

What would you do? What would you do if a fellow Jew stood there in tears begging you for help? If her situation was so difficult that you knew you yourself couldn’t handle it? If your heart ached to offer at least some relief? What would you do? Wouldn’t you say yes? Of course, you would! We’re Jews. Known for our compassion. Continue reading A Special Yes

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Volunteering: What the Kids Have Discovered

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Volunteering offers so much more satisfaction!

Some say that the new generation is steeped in materialism and can’t see past their ipod screens. Is it true? A recent event in Israel honoring junior volunteers yielded some surprises.

Last summer, M, a sixth grader, noticed something strange going on in her neighbor’s home. Continue reading Volunteering: What the Kids Have Discovered

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Because of You!

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June 2017 – BMDR ACTIVITY SUMMARY
22 lifesaving transplants
17 from personalized donor pools- see below
2,513 total transplants
858,125 members in registry Continue reading Because of You!

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