It’s hard work. Ditza is exhausted each day as she makes her way home, usually quite past her official hours. She needed a bit of encouragement to put some verve into her steps. Recently that encouragement came in the form of two ‘notes from heaven’ showing how much Hashem values her efforts. Continue reading Meals on Wheels: Lottie’s Kitchen
MAY 2017 – BMDR ACTIVITY SUMMARY
28 lifesaving transplants
15 from personalized donor pools (see below)
2,491 total transplants
856,665 members in registry Continue reading Because of You!
The summer break is a magical world of fascinating experiences for children, who enjoy the long days of vacation and fun, of frolic and adventure. At the same time, it can be quite a headache for parents, who are kept busy figuring out how to keep the children occupied and who will supervise them when the adults go to work and take care of other occupations.
This “headache” is twice as daunting when we are speaking of children with special needs and impairments, who need extra attention and even closer supervision. Their world is cramped into the limited scope of their families and they get lost in the lack of routine, as dependent children who constantly need a loving look, a caress, and help in mobility. Their inability to adapt to to an unstructured day leads to chaos and misery both on the part of other family members and the child himself. The house is continually upside-down. Siblings cannot invite a friend over for a game or even read more than a page of a book without a sudden avalanche of the contents of dresser drawers coming tumbling down on them. The logistics of a simple trip to the local park make it an impossibility for the family to enjoy. Mommy cannot even dream of a more complex trip to the zoo. As frustrated as the family becomes, the frustrations are two-fold for the special child who does not have a clue as to how to productively occupy himself. Continue reading Special Needs: Accommodating Those Who Are Different
Ezer Mizion, a leader in the field of Alternative and Augmentative Communication, recently hosted a major conference whose purpose was to bring the latest innovations to both professionals and family members. The plight of those who were never given or who have lost their ability to speak has long been on Ezer Mizion radar.
One cannot imagine the anguish of an intelligent, hitherto productive adult with opinions of many subjects who is forced to remain silent as discussions take place around him. His dignity is further reduced when obliged to accept as his daily needs what others provide for him, unable to make his basic wants known. Continue reading Momentous Conference on AAC (Alternative and Augmentative Communication)
When staff really cares. When it’s not just a job…punch in/punch out. When the CEO gives out his cell number to recently orphaned children telling them to call anytime (and they do). When volunteers are inspired to drop what they are doing, time and time again, to help out a Jew in need… this is Jewish compassion at its best.
Sometimes it requires the utmost sensitivity. Like the kallah (bride) whose chassan (groom) was discovered shortly before the wedding to have leukemia. The wedding was rescheduled and the newlywed couple tried to build a home, albeit in a different way than planned, together. Ezer Mizion supported them in every way. The nightmare is over now. Please look over our shoulder, dear reader and supporter, as we read together the letter sent to the Ezer Mizion office. It is your gifts that enable Ezer Mizion to continue being the strong, dependable pillar for so many to lean on.
To the Fantastic, Special Organization: Ezer Mizion!
First of all, we want to thank you from the bottom of our hearts for your boundless giving and support, which helped us and gave us the tools we needed to get through a most difficult period, physically strong and emotionally healthy.
About two years ago, we got engaged, b’sha’ah tovah u’mutzlachat. The engagement period passed by pleasantly, filled with many hopes and dreams about the home that we would build together and the happy life we would share.
We do not know Hashem’s (G-d’s) calculations, but we do know that everything He does is for the best. And so, a month before our wedding, my husband was diagnosed with leukemia.
Suddenly, everything looked different… The wedding was pushed up to take place a few days later, and immediately afterwards, we began treatment. The physical and emotional pain and the challenges involved in these treatments are too complex to describe…
Amid all the agony and frustration, the Ezer Mizion team – a marvelous organization unmatched in its unfaltering assistance and support – appeared on the scene, truly loyal messengers. They helped us in countless ways, both practical and emotional. They were always there, even before we realized we needed something.
Ezer Mizion wisely and gently set us up with an expert therapist, which, in our sensitive situation, was truly a lifesaver!! She listened, supported, encouraged, and counseled us. She baruch Hashem (thank G-d) helped us in this very delicate situation, not to break down, but to remain happy, strong, optimistic, and full of emunah (faith), using our challenge to grow and form an even closer bond.
Again, we feel eternally grateful to those who were behind all this outpouring of chessed- those who helped, those whose financial support enabled this help…
We give you our heartfelt blessings that you should always be on the giving end, in good health, joy and happiness, and may Divine assistance accompany you in all your endeavors.
With our greatest appreciation,
Moshe and Chedvah
Jewish compassion…Sometimes it requires the flexibility of changing plans at the drop of a hat. A family with three small children recently emigrated to Israel from France. Resettling was hard enough but became overwhelming when the wife was suddenly diagnosed with cancer. Rides to the clinic, professional emotional support, regular meals, child care assistance, medical advocacy would all be theirs in a short time. But right now, this morning when Ezer Mizion became aware of their plight, they needed lunch. Food strengthens the body. Food invigorates the soul. Food enables the family to handle the crisis suddenly thrust upon them. And no lunch was yet on schedule. A call went out to volunteers: I know it’s very short notice but can anyone provide a hot lunch for five people today and for the next two days? In 1.5 minutes, that’s ninety seconds (!), one of our angels responded. A delicious, attractively served lunch was prepared by one volunteer, delivered by another to the family on time as if it were weeks in the preparation.
Ezer Mizion: where Jewish compassion provides the electricity that makes the wheels go ‘round.
Would you like to join the ‘wheel of compassion’?
Below are the donor pools that saved lives this month, and their total transplants.
Alan Cohen Donor Pool – 76 lives saved
David & Sara Farajun Donor Pool – 79 lives saved – 5 this month!
Tommy & Yehudit Farkas Donor Pool – 1 life saved
Hole In One Donor Pool – 20 lives saved – 2 this month!
Leora Kuhillow Donor Pool – 9 lives saved
Manny & Mojdeh Malekan Donor Pool – 1 life saved
Irving & Cherna Moskowitz Donor Pool – 21 lives saved
Ronald O. Perelman Donor Pool – 28 lives saved
Rolf & Ruth Redlauer Donor Pool – 6 lives saved
Dudu & Chagit Saada Donor Pool – 1 life saved
Alan & Nicole Samson Donor Pool – 7 lives saved
Ephriam & Devora Schreiber Donor Pool – 1 life saved
Farzad & Sheila Shahery Donor Pool – 2 lives saved
Shva Company Donor Pool – 5 lives saved
Wiener, Widawsky, Rebenwurzel Donor Pool in memory of Shmuel and Yaffa Herman – 1 life saved
Marjorie & Arnold Ziff Donor Pool (Anne Manning’s Donor Pool) – 1 life saved
Does Ezer Mizion provide transplants to Israel residents only?
Ezer Mizion receives Search Requests from oncology clinics around the globe. DNA matching is based on ethnics. As the largest Jewish Registry in the world, Ezer Mizion is the natural address for an oncology clinic working with a Jewish patient in Europe, Russia, South Africa, South America, Australia, Canada and the US.
In April 2017, 14 of 31 transplants were done for Israeli residents and 17 for countries around the world including 6 in US and Canada.
Did the partnership with the IDF create any significant change in the success of finding DNA matches?
Due to IDF recruits being young and healthy, they remain on the database for decades, thus greatly increasing the chances of eventually being found to be a match for a patient. In addition, they come from highly varied backgrounds resulting in much increased representation among minority ethnic groups.
In April 2017, 18 of the 21 transplants funded by donor pools are IDF recruits, some having been inducted and joined the registry just a few months ago.
How long, on the average, does it take for a new Bone Marrow Donor Pool to receive the at long awaited letter: You have saved a life!
There can, of course, be no guarantees. In April of 2017, 4 of the 21 transplants funded by donor pools were opened within the last half year.
OUR AMAZING 21ST CENTURY
Medical science has made great strides with illnesses that, not too long ago, afforded very little hope for the patient. In some cases, even the ‘man on the street’ has become part of the remedy. Bone marrow transplants are a case in point. Bone marrow transplants have become the cure for a wide variety of life-threatening diseases ranging from many types of cancer to immunodeficiency syndromes and anemias.
WHAT IS BONE MARROW? Continue reading What Are Bone Marrow Transplants?
In recent years, a bone marrow transplant has been proven to be the cure for a myriad of diseases. Many forms of cancer including leukemia and lymphoma in addition to other diseases such as sickle cell anemia and SCID are only some of the life-threatening illnesses that have bowed to its power. Like penicillin, a bone marrow transplant can save lives. But unlike penicillin, it cannot simply be purchased at the local pharmacy.
Everyone dreams about it. Very few ever have the opportunity. I was one of those very few. True, I didn’t jump into the ocean and save a child from drowning or dash into a burning building to save a baby but I did save a life. A forty-year-old cancer patient had only one chance to survive—a bone marrow transplant. A genetic match is vital for success and I was that genetic match. An Ezer Mizion staff member asked me if I would do it. Would I do it???! How could I not do it?! How could I live the rest of my life knowing that because of a little discomfort, a little inconvenience, a young woman was prevented from living the rest of hers? Continue reading Saving a Life: The See-Saw Remains on Up