In recent years, a bone marrow transplant has been proven to be the cure for a myriad of diseases. Many forms of cancer including leukemia and lymphoma in addition to other diseases such as sickle cell anemia and SCID are only some of the life-threatening illnesses that have bowed to its power. Like penicillin, a bone marrow transplant can save lives. But unlike penicillin, it cannot simply be purchased at the local pharmacy.
In her early sixties, Chava was a young grandmother to seven grandchildren. She was looking forward to many milestones in the future until she discovered that her future was very uncertain indeed. Twelve years ago, she had been diagnosed with lymphoma. A self-transplant of stem cells resulted in a cure and the nightmare seemed to be over until several years later the disease returned. Would there be a cure this time? Only if a transplant can be performed using the stem cells of a genetically matching donor. The procedure was not difficult but finding this mysterious donor whose DNA corresponded to hers seemed to be nothing short of miraculous. He could be any place where Jews of her ethnic group have settled…South America, Canada, US, Australia, Europe. Anywhere. The first step was to contact Ezer Mizion, the largest Jewish registry in the world with its database of over 800,000 potential donors. And, lo and behold, there he was, right there in Israel. Continue reading Watching the Grandchildren Grow Up…Together: A DNA Success Story
Avigayil has successfully trained many in public speaking as head of TED, a worldwide organization whose website attracts viewers that number into the millions. She is passionate about her profession and believes anyone can speak publicly if he is excited about his topic. One would assume that if Avigayil were to take the podium herself, Public Speaking would be her focus. But she says otherwise. “There is something I am even more enthusiastic about. In fact, if it were not for that subject, I would not be here today. What is it? It’s leukemia.
“I’m sorry. He won’t be back in the office until a week from Tuesday. Please call then.” A typical response. Professional. No complaints. We all understand that being out of the office means being unavailable for work-related matters and we don’t expect him to interrupt his golf game or his very important meeting in China to answer our questions. However, when it comes to saving a life, Ezer Mizion will not accept such a response. What happened? Here’s the story.
Ezer Mizion’s Bone Marrow Registry has saved the lives of over 2000 patients around the globe. Recently, a call came in from Schneider’s Hospital that a six year old child needed a transplant as soon as possible. Is there a genetic match available? A search was done. Success. Among the 800,000 registrants on the database, an excellent DNA match was found. The potential donor was contacted. She’ll be happy to donate but there’s one problem. The next level of testing must be done asap and she is currently in Brno in the Czech Republic. “Can I make an appointment with the lab for when I return in a few weeks?” A natural response. Polite. Professional. The Ezer Mizion staff member could simply note on records: Donor out of country. Testing will be done when returns. The file would then be closed pending her return. The patient? Perhaps his condition would still be such that he can benefit from the transplant. Perhaps not. Ezer Mizion was not going to take that chance.
Linked to Life, another division of Ezer Mizion that utilizes a What’s App program to make vital contacts worldwide, was called. Thousands of screens lit up while the test tubes were being prepared. ‘We need a volunteer to drive vital test tubes from Petach Tikva to the airport in Tel Aviv to meet someone going on the 3:50 flight to Vienna. In moments, a volunteer responded and the tubes were on their way. While he was driving, screens lit up again looking for someone scheduled to be on the flight to take the tubes. Bzzzz. Responding. Am at airport at Gate 123. I’ll take it. Another Linked to Life volunteer was waiting at the Prague airport and drove the package to the Chabad House. The head of the Chabad House drove through the night to Brno and used his contacts to have the clinic opened in the middle of the night to draw blood from the potential donor. More clicks while the now-filled test tubes were making their way back to Brno. Anyone traveling from Prague to Israel on next flight? By the next morning, another Ezer Mizion Linked to Life volunteer was waiting in the airport at Tel Aviv to transport the tubes to the Bone Marrow Registry in Petach Tikvah. Less than twenty-four hours. Mission accomplished.
Living in the US and like to join Linked to Life? SMS: 011 972 52 580 8936
The bone marrow transplant was over. There she sat blowing bubbles for her pre-schooler. Together with several neighborhood children, he ran after them on his chubby legs reaching out to touch the effervescent, multi-hued balls of magic, then watching, mesmerized, as they mysteriously made their way, flying up, up, up to never-neverland.
Young children are fascinated by bubbles. Yet certainly no child would want to live in one. As her tiny son ran on the grass with his little friends, she offered up a fervent prayer of gratitude. Up until recently, her son was called the Bubble Baby. He was forced to live in a virtual ‘bubble’, a completely sterile environment, to save his young life. Continue reading A Bone Marrow Transplant for The Bubble Baby
For more than twenty years, Lieutenant Colonel Yossie Cohen has been involved in extensive military operational activity as, until recently, head of the General Staff’s Operations Brigade for the Southern Front. He was engaged in many a battle for his country and it was he who coined the names of operations “Protective Edge” and “Pillar of Defense.” Involved in life and death decisions, the few moments he had spent as a young man ten years before at the Ezer Mizion Registration Station, filling out a one-page form was certainly not in the forefront of his mind. Continue reading A Shining Example
Caesaria Golf Course in Israel changes its face every Thanksgiving weekend. A Peter Dye course, it poses an invigorating challenge to the best of players while remaining enjoyable to the average golfer. On each Thanksgiving weekend, however, the challenges consist of so much more than hills and handicaps. Each player enters the course with a sense of purpose. He is there to help save lives. Every stroke is a strike against cancer.
The event benefits Ezer Mizion’s International Jewish Bone Marrow Registry which has saved the lives of over 2000 Jews around the globe. These were cancer patients whose sole chance of survival had been a transplant. The life-saving transplant could only have taken place if a genetically matching donor was found. Ezer Mizion’s Registry, the largest Jewish registry in the world with over 670,000 potential donors, found those DNA matches, thus providing a future for young grandparents, Mommies and Daddies of young families and tiny children who would now be able to grow up.
‘Hole-in-One’ Donor Pool has been created whereby all proceeds of the annual golf event are earmarked for genetic testing for a specific block of potential donors. The committee heads are notified each time a transplant of stem cells by a donor, whose genetic testing was funded by the Pool, takes place. The notification begins with the electrifying words: You have saved a life. To date,16 lives have been saved by the Hole-in-One pool since its inception seven years ago. As if to encourage this year’s participants, three of those sixteen transplants took place in October of 2016.
What do the participants think? Let’s hop in a golf cart and ask them. Ran Saher, CEO of Maccabi Healthcare excitedly informs all around him, “Today wasn’t only about winning. It was about saving lives! Says Sheldon Shein, Executve Chairman of Hennig Diamonds: Playing in the Ezer Mizion tournament makes you think. You realize that there’s a lot bigger things in life than getting the ball in the hole. By joining the tournament, we can accomplish a ‘hole’ lot. Jackie Mukmelm, CEO and President of MAN Properties, “Just imagine a person who has given up hope and thinks that he will soon be leaving his family forever. Then one day, he receives a phone call that he never thought he would get. It’s Ezer Mizion and they found a DNA match. He’s going to live! Wow! And to think that we, with our playing here today, accomplished that!
Thanks to all of you- those residing in Israel and those who visited Israel from across the ocean- for participating. We look forward to your joining us next year on November 20th, 2017.
Congratulations to our 2016 winners.
First Place: Stephane Benguigui, David Dadi, David Fitoussi, Jonathon Ohayon
Second Place: Mark Joffee, Saul Katzman, Neil Rubinstein, David Turner
Third Place: Elizur Agus, Eytan Bar-Chama, Jack Garih, Zev Weissberg
Most Honest Team: Ari Gruenspecht, Aaron Miller, Daniel Rubel, Simmy Zimbalist
Another Ezer Mizion International Jewish Bone Marrow Registry success story! Jacob is now on his way to becoming a doctor and helping others. Just a few short years ago, his future was not certain at all. Read on as he tells his story.
A perfect stranger saved my life. He didn’t jump in front of a moving vehicle or fend off an attacker. He wasn’t perfect for the reasons one might think, but for my predicament, he was indeed perfect—a 10 out of 10 match, to be exact. I required such a match to survive.
As a senior in high school, my classmates had voted me “most likely to cure cancer.” Ironically, a year later, I found myself lying in a hospital bed, after being diagnosed with leukemia. The conundrum was that I felt fine and was anxious to begin my summer of organic chemistry as part of a combined undergraduate and medical school program. At 19 years old, I was completely unprepared to be diagnosed with cancer, admitted to the hospital, and informed I would need an urgent bone marrow transplant and chemotherapy, all in the same day. I had planned out my life for as long as I could remember, and suddenly nothing was under my control. Continue reading A Perfect Stranger
As Israel’s Memorial Day was ushered in, the sad memories of the families of fallen soldiers once again came to fore. David Sarel, currently a combat soldier in the Givati Brigade , was one of those. His older brother, Maj. Benaya Sarel, was killed in Operation Protective Edge in 2014. It was three weeks after David’s induction when his older brother was ambushed by terrorists at the entrance to a tunnel in the southern Gaza Strip. Continue reading Israel’s Memorial Day: A Unique Commemoration
It was a long, exhausting day. A little prick in the finger hardly registered with Yehudah as he went through all the red tape of his army induction. The prick had long healed when a call came in during his commander course. “I was needed to save a life. It wasn’t the kind of call you receive every day. I consulted with my Rav who advised me to do whatever is necessary. The life of another Jew was at stake. I was the only one in the entire world who was a genetic match to this person. My bone marrow would save him. It was all up to me.
But it still wasn’t real.
A year later, I received another call saying that the recipient wanted to meet me. That’s when it became real. There was a person on the other end. Suddenly, these moments at the clinic last year took on a face and a name and a family and dreams.
The recipient was Itai Chanan from Herzliya who discovered that he had blood cancer. “One day I came home with a sort of wound near my forehead, and on Shabbat morning, I woke up with a red, swollen face. Abba rushed me to the hospital. It was there that I heard that word: leukemia. Continue reading His Father’s Hug