The Bubble Baby

pr bmr Inbar Ronen - bubble baby- w out mother ok to useThere she sat blowing bubbles for her pre-schooler. Together with several neighborhood children, he ran after them on his chubby legs reaching out to touch the effervescent, multi-hued balls of magic, then watching, mesmerized, as they mysteriously made their way, flying up, up, up to never-neverland.

Young children are fascinated by bubbles. Yet certainly no child would want to live in one. As her tiny son ran on the grass with his little friends, she offered up a fervent t’filla of gratitude.   Up until recently, her son was called the Bubble Baby.  He was forced to live in a virtual ‘bubble’, a completely sterile environment, to save his young life.  Continue reading The Bubble Baby

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Because of You!

website bmr update template

 

 

January 2017 – Bone Marrow Donor Registry Activity Summary

 

27 lifesaving transplants

12 of them from personalized donor pools

2,377 total transplants

843, 373 members in registry

 

bmr 1 17 16508080_798750436944561_1670055473141759450_nOf these, 12 were made possible by funding from personalized donor pools. Continue reading Because of You!

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Every Stroke a Strike against Cancer

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Caesaria Golf Course in Israel changes its face every Thanksgiving weekend. A Peter Dye course, it poses an invigorating  challenge to the best of players while remaining enjoyable to the average golfer. On each Thanksgiving weekend, however, the challenges consist of so much more than hills and handicaps. Each player enters the course with a sense of purpose. He is there to help save lives. Every stroke is a strike against cancer.

 

The event benefits Ezer Mizion’s International Jewish Bone Marrow Registry which has saved the lives of over 2000 Jews around the globe. These were cancer patients whose sole chance of survival had been a transplant. The life-saving transplant could only have taken place if a genetically matching donor was found. Ezer Mizion’s Registry, the largest Jewish registry in the world with over 670,000 potential donors, found those DNA matches, thus providing a future for young grandparents, Mommies and Daddies of young families and tiny children who would now be able to grow up.

 

Those who make it all happen: Herman Weiss and Simmie Chiger
Those who make it all happen: Herman Weiss and Simmie Chiger

‘Hole-in-One’ Donor Pool has been created whereby all proceeds of the annual golf event are earmarked for genetic testing for a specific block of potential donors. The committee heads are notified each time a transplant of stem cells by a donor, whose genetic testing was funded by the Pool, takes place. The notification begins with the electrifying words: You have saved a life.  To date,16  lives have been saved by the Hole-in-One pool since its inception seven years ago. As if to encourage this year’s participants, three of those sixteen transplants took place in October of 2016.

 

golf Israel 2016 carts w logos 15304448_755096737976598_7143135351909858764_oWhat do the participants think? Let’s hop in a golf cart and ask them. Ran Saher, CEO of Maccabi Healthcare excitedly informs all around him, “Today wasn’t only about winning. It was about saving lives! Says Sheldon Shein, Executve Chairman of Hennig Diamonds: Playing in the Ezer Mizion tournament makes you think. You realize that there’s a lot bigger things in life than getting the ball in the hole. By joining the tournament, we can accomplish a ‘hole’ lot. Jackie Mukmelm, CEO and President of MAN Properties, “Just imagine a person who has given up hope and thinks that he will soon be leaving his family forever. Then one day, he receives a phone call   that he never thought he would get. It’s Ezer Mizion and they found a DNA match. He’s going to live! Wow! And to think that we, with our playing here today, accomplished that!

 

Thanks to all of you- those residing in Israel and those who visited Israel from across the ocean- for participating. We look forward to your joining us next year on November 20th, 2017.

 

Congratulations to our 2016 winners.

First Place: Stephane Benguigui, David Dadi, David Fitoussi, Jonathon Ohayon

Second Place: Mark Joffee, Saul Katzman, Neil Rubinstein, David Turner

Third Place: Elizur Agus, Eytan Bar-Chama, Jack Garih, Zev Weissberg

Most Honest Team: Ari Gruenspecht, Aaron Miller, Daniel Rubel, Simmy Zimbalist

 

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Because of You!

website bmr update templateNOVEMBER 2016 – BMDR ACTIVITY SUMMARY

 

33 lifesaving transplants
17 from personalized donor pools
2,321 total transplants
831, 388 members in registry Continue reading Because of You!

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Bags of Chessed

IDF celebration 2016 fCountless guests converged at the palatial home of President Rivlin and, the following day, upon the Hilton, Israel Ballroom to participate in the grand event celebrating the achievements of  Ezer Mizion’s International Bone Marrow Registry which has saved 2200 Jewish lives. Requests arrive regularly from 47 countries worldwide. Come join us on an emotional roller coaster as one speaker after another demonstrates the organization’s accomplishments. Continue reading Bags of Chessed

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Ezer Mizion One of Three Nominees of International Entity

pr general bldg DG857322Four years ago, Ezer Mizion’s International Bone Marrow Registry had reached the pinnacle by meeting the very stringent criteria of WMDA (World Marrow Donor Association). Of the one hundred members of the international entity, BMDW, only 20 had been accredited by WMDA. It was Ezer Mizion’s high level of standards had catapulted the organization to membership in the prestigious World Marrow Donor Association.

A project of WMDA is WMDD ( World Marrow Donor Day) honoring stem cell donors around the world. Now, only four years later, Ezer Mizion is one of the three nominees for WMDA’s World Marrow Donor Day Award. The winner is to be announced in the spring.

The WMDD event is geared to raise awareness among the world population of the need to take responsibility for a bone marrow registry in order to save lives. Ezer Mizion, together with its compassionate, giving Jewish population, exemplifies the concept of this responsibility.

Drives are held frequently in Israel to increase specific ethnic groups in its database so that when a member of that group will be in need of a transplant to save his life, the DNA match will be readily available for him, avoiding needless loss of life.pr bmr call bag 1489_ne_photo_ab7e0

Another facet of Ezer Mizion’s pursuit of its goals is the agreement with the IDF in 2005. The IDF created an additional station to its recruiting centers enabling soldiers to join the registry as part of their induction. These young, healthy potential donors of varied ethnicity have greatly added to the Registry. Fifty thousand new recruits joined in this past year alone. Search requests received from 36 countries worldwide now have a much higher rate of positive response.

The IDF’s contribution to the Registry was celebrated in October in the home of President Rivlin who eloquently spoke of the mutual responsibility to the global Jewish community felt by the Jewish population which has allowed the Registry to rise to its present level.

The incredible growth of the Registry has only been able to take place because of the generosity of Jews throughout the world who have sponsored the astronomical cost of DNA testing. Their gifts have funded the costly genetic testing of each new, potential donor, thus enabling the Registry to grow to a total of over 800,000 on its database.

pr bmr machine w bags 1489_ne_photo_stories2_e8667Through the media, the greater Jewish public has become aware of grateful cancer patients worldwide whose lives have been saved by Ezer Mizion. A young father of two tiny girls who had been terrified of leaving his daughters to grow up as orphans, a teen who is now studying to be a doctor so that he can help others, a social worker who suddenly found herself on the other side of the desk, a chubby five-year-old who is adorable even when he is throwing a tantrum… these are some of the many who will now have a future because of generous donors who have rallied to the cause, realizing that Ezer Mizion’s Registry acts as an insurance policy for Jews everywhere.

The recent nomination for WMDD’s upcoming World Marrow Donor Day Award is gratifying and shows the acknowledgement of Ezer Mizion’s inordinate accomplishments by this worldwide respected entity.

 

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Because of You!

website bmr update templateIn September 2014 Ezer Mizion’s Bone Marrow Registry facilitated 33 lifesaving transplants for a total of 2,268 lives saved!

Of these, 24 were made possible by funding from personalized donor pools.

Here are the sponsors who saved lives this month, and the total number of transplants done by their donor pool Continue reading Because of You!

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1100 Thank You’s

IDF celebration 2016 fA decade ago, the IDF recognized the invaluable initiative of Ezer Mizion’s International Jewish Bone Marrow Registry and became its partner in saving the lives of cancer patients around the globe.  An Ezer Mizion Registration Booth became an integral part of the IDF Recruiting Station enabling new recruits to join the Registry.  Thus began the much lauded partnership between Ezer Mizion and the Israel Defense Forces which enabled its soldiers to not only protect its country but also saves Jewish lives worldwide. The vast range of ethnic groups among the soldiers have resulted in a dramatically positive response to the thousands of  search requests for a genetic match for patients whose sole chance of survival is a transplant.  To date, eleven hundred IDF soldiers have donated their stem cells to cancer patients worldwide.

IDF celebration 2016 g In the words of an overjoyed mother: Who would have imagined that a young religious man from Israel would be the only person in the world who could save our son’s life as he battled AML? We are forever grateful to this wonderful organization, Ezer Mizion, and the work they do.

In keeping with his great respect for the work of Ezer Mizion, President Reuven Rivlin and his esteemed First Lady opened the Presidential Residence to host the momentous event honoring these IDF soldiers who were individually presented with treasured Lifesaving Medallions. The guests witnessed the results of the soldiers’ altruism, Jews who were only alive today because these young men had joined the Registry.

IDF cebration 2016 hDr. Bracha Zisser, together with her husband Moti, who recently succumbed to his own bout with cancer, had founded Ezer Mizion’s Bone Marrow Registry in 1998 when they clearly saw the need for a Jewish registry.  Dr. Zisser took the microphone and began speaking about a man named Erez Raslovsky, then stopped mid-speech and called him up to tell his own story. In a voice choked with tears, he thanked Ezer Mizion that his children would not have to grow up as orphans. A family man with a wife and kids, he had been told that he had only six months to live. “I would love to meet the man who saved my children’s father,” he ended. Within seconds, as if drawn by a strong magnet, Omer Ben Horin ran up to the stage no longer able to hold back his tears. The two embraced. Like brothers, from here on in, they would always be a part of each other’s lives. David and Sarah Farajun, whose donor pool had funded the genetic testing of Ben Horin, joined the two on stage in an emotional triangle of triumph. Soon it Shir Tahar’s turn to tell her story. She had been planning a trip to South America. She expected minor difficulties perhaps a delayed flight or a missing suitcase. What she didn’t expect wasIDF celebration 2016 d leukemia. Literally on the eve of her flight, she experienced extreme pain in her legs. Prognosis: possible death unless a bone marrow transplant could take place soon. She met her donor, Eyal Goldman, for the first time on the lawn of the Presidential Residence. “ I owe him my life,” she cried.

Guests were shown a heartrending film of an angelic nine-year-old girl recently diagnosed with cancer who was waiting for the Phone Call. At nine, she understood that without a bone marrow transplant, she would not celebrate her tenth birthday. Will a DNA match be found? In time? While her mother hugs her and urges her to be strong and have hope, each guest inwardly joins in her prayers, her dreams of a future. President Rivlin was visibly moved as he began his address, noting that this is not the usual event hosted at the Presidential Residence.

The celebration was followed by a dinner. The two events were filled with a myriad of guests with nary an inch to spare. Chananya Chollak, International Chairman of Ezer Mizion, warmly welcomed the guests saying we are all one family and feel each other’s pain. And one family it was. All eyes were riveted to the dias  as David Ivry, vice President of Boeing International, whose Donor Pool Circle has saved many lives emIDF celebration 2016 cotionally stated what so many other founders of Donor Pool Circles have found to be true: whoever gives receives so much more. He was followed by others who thanked Ezer Mizion. Said Avrohom Fluk, Chairman of the Board of YDI Ltd.: My hand trembled when I first received a letter saying I had saved a life. Saved a life? I had saved a world as the Talmud states. I had saved a family. I had saved his children. His grandchildren. His great-grandchildren. If I had to sum it up in one word it would be Thank You. Thank you Ezer Mizion for giving me such an opportunity. Said Manny Malekan of Malechite Group Ltd.: In two weeks it will be Rosh Hashona. Hashem will ask, “What have you done with the year I gave you? Is your life worth continuing? And I have an answer, “ I have helped Ezer Mizion!” One after the other, the dais was graced with those who helped save a life and those whose lives were saved.   Atty. Moriel Matalon’s son fervently thanked Ezer IDF celebration 2016 bMizion for saving his father’s life. He was joined by his two young daughters who added their gratitude in their sweet, childish voices. Within seconds, the grandfather ascended the stage and hugged them all before beginning his own expression of appreciation of being able to watch his grandchildren grow up. He ended by ceremoniously donning a yarmulka and reciting the blessing thanking Hashem for giving him life. Three generations of the Farajun family joined others in thanking Ezer Mizion for enabling them to save sixty-six lives! The evening’s speeches were interspersed with songs of hope and dreams, creating an ambience high above the mundane of everyday living. The linen napkins, so crisp and sparkling only an hour before, were damp with tears as the hearts of the guests joined with those appearing on the dais, so gratified and elated to be a part of Ezer Mizion’s life-saving mission.

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IDF Soldiers Honored By Greer Fay Cashman, Jerusalem Post/ Grapevine

pr bmr idf■ IN 1996, Moshe Schayek, a young man
desperate for a bone marrow transplant,
turned to Ezer Mizion in the hope of finding
a matching donor. Ezer Mizion’s Cancer
Support Division helped his family coordinate
a bone marrow drive, and the response
was amazing. Some 5,000 people lined up
in Jerusalem, wanting to help save his life.
Unfortunately, it was to no avail. No match
was found and Schayek died. But he left a
legacy that has enabled close to 10,000
other people in 48 countries around the
world to live. The search led to the establishment
in 1998 of Ezer Mizion’s International
Bone Marrow Donor Registry, which is
headed by Bracha Zisser.
As of August 1, 2016, the Registry has
grown to include 818,266 potential donors,
of whom 394,379 are IDF recruits who
joined the registry following a landmark
agreement between Ezer Mizion and the
Israel Defense Forces, whereby new recruits
routinely undergo testing as part of their
induction process.
On Sunday, September 19, in celebration
of the 10th anniversary of this collaborative
lifesaving effort between the IDF and Ezer
Mizion, 650 soldiers will receive Gift of Life
medals at a special ceremony at the President’s
Residence, in the presence of President
Reuven Rivlin, Hagai Toplansky, commander
of the IDF’s Personnel Directorate,
Brocha Zisser and Ezer Mizion founder Rabbi Chananya
Chollak.

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A Perfect Stranger

jacob adashek- royi horowitz facing frontAnother Ezer Mizion International Jewish Bone Marrow Registry success story! Jacob is now on his way to becoming a doctor and helping others. Just a few short years ago, his future was not certain at all. Read on as he tells his story.

A perfect stranger saved my life. He didn’t jump in front of a moving vehicle or fend off an attacker. He wasn’t perfect for the reasons one might think, but for my predicament, he was indeed perfect—a 10 out of 10 match, to be exact. I required such a match to survive.

As a senior in high school, my classmates had voted me “most likely to cure cancer.” Ironically, a year later, I found myself lying in a hospital bed, after being diagnosed with leukemia. The conundrum was that I felt fine and was anxious to begin my summer of organic chemistry as part of a combined undergraduate and medical school program. At 19 years old, I was completely unprepared to be diagnosed with cancer, admitted to the hospital, and informed I would need an urgent bone marrow transplant and chemotherapy, all in the same day. I had planned out my life for as long as I could remember, and suddenly nothing was under my control. Continue reading A Perfect Stranger

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