Playing Twenty Questions in the Hospital Room

Image result for twenty questions image Sara felt helpless. Her grandmother felt helpless. Each one frustrated, until Sara remembered a course she had taken three years ago.

Sara obtained the email address of her former university teacher, Yonit Hagoel Karnieli, Director of Ezer Mizion’s AAC (Alternative Augmentative Communication) National Center and sent her the following message: Continue reading Playing Twenty Questions in the Hospital Room

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When ALS Robs Its Victim of Every Skill He Had

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Communicating via Ezer Mizion AAC device

We tend to take our abilities for granted. Scratching a mosquito bite, calling out to a friend across the street, running for a bus, licking an ice cream cone…these are all simple daily activities until one finds he no longer is capable of performing these previously effortless actions.

Muscular movement is controlled by the neurological system. Motor neurons ‘tell the muscles what to do’. But if they don’t? That is when we begin to realize just how complex our bodies are. A person finds he can no longer perform actions that have been part of his life since infancy.

This is what happens in ALS. The motor neurons are gradually lost and the muscles they control become weak and then non-functional.  ALS stands for amyotrophic (without nourishment to muscles) lateral (affecting the side of the spinal cord) sclerosis (the hardened nature of the spinal cord). Its onset is gradual and, at first, the symptoms are merely annoying: dropping things, tripping, perhaps slurred speech. Slowly, other muscles become involved including those that help us breathe. Up until five years ago, life expectancy was short with death often due to respiratory failure and lack of ability to ingest nutrition but due to recent technological advances in prolonging life, some ALS patients can now live for decades.

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Reuven maintains his connection to his world using Ezer Mizion AAC equipment despite the ravages of ALS

The question then arises regarding the quality of life of these patients. A typical end stage Amytrophic Lateral Sclerosis patient is not mobile at all. He lies in his bed or recliner, unable to lift his arm to reach for a tissue, unable to swallow food, unable to ask for a drink. He is completely dependent on his caretaker for every need. Continue reading When ALS Robs Its Victim of Every Skill He Had

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 Autism: What It Is and What It Isn’t

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Taking the Mystery out of Autism

Autism is frightening. It brings to mind a child that not only has physical or cognitive disabilities but also cannot relate to and join normal society. There is a tremendous lack of understanding about the ASD spectrum which leads to compounding the fears of the average parent.   Continue reading  Autism: What It Is and What It Isn’t

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Momentous Conference on AAC (Alternative and Augmentative Communication)

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Communication Being Re-learned

Ezer Mizion, a leader in the field of Alternative and Augmentative Communication, recently hosted a major conference whose purpose was to bring the latest innovations to both professionals and family members. The plight of those who were never given or who have lost their ability to speak has long been on Ezer Mizion radar.

One cannot imagine the anguish of an intelligent, hitherto productive adult with opinions of many subjects who is forced to remain silent as discussions take place around him. His dignity is further reduced when obliged to accept as his daily needs what others provide for him, unable to make his basic wants known. Continue reading Momentous Conference on AAC (Alternative and Augmentative Communication)

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