Our list is long. The day is short. So many items get transferred to the next day’s list. Constant pressure. Never finishing. Can we even begin to imagine what it be like to have no list? No list at all? No goals? Nothing to work toward? Nothing to look forward to?
For a short moment you picture yourself breathing a sigh of relief. I’m done! But then you begin to think. And you realize how unappetizing a day is with nothing to get ready for, nothing to plan. Just nothing. Continue reading No List At All?
Nine months development in the womb is the ideal. Less than that is less than the ideal. Nowadays with so many technological advances, babies born much earlier than full term will live and remain healthy but they will often be missing a significant facet of their development. Instead of spending the full term of the pregnancy in a protective, enveloping womb, preemies emerge into the world when they are not yet prepared for the environment, which demands of them to be more independent and higher functioning. Continue reading Preemie Question Marks
33 transplants, 26 from donor pools 3,263 total transplants (of these 1,992 from the IDF) 987,268 members in registry (of these, 545,579 from the IDF) Transplant Countries
Belgium, France, Germany, Israel, Italy, Spain, Turkey, UK, USA
Donor Pool Countries
Brazil, Canada, Israel, Switzerland, UK, USA
Did you ever feel useless? Like nobody needs you around? We all have such feelings from time to time but they don’t last too long. They dissipate as the first child screams out, “Where are my shoes?” Or when a neighbor knocks on your door in desperate need of your cheesecake recipe. Or when your elderly father calls to say his bulb burned out and he needs you to come over to change it. We feel valued when we offer an opinion and people listen, when we handle a hour-long tantrum and husband whispers, “I left a chocolate bar on the night table. Go relax with a book for awhile. I’ll take over bedtime.”
We’re needed. We’re valued. The signs are everywhere. But what if there is no husband or neighbor or child? What if she is alone in a nursing home, a lonely holocaust survivor? The caretaker is not interested in her opinions, her thoughts, her dreams. Day follows day with breakfast, lunch and supper delivered to her. She no longer lives independently. No longer make decisions. She begins to wonder if she, a real person, is really there. Bit by bit, deterioration sets in. Cognitive function, the ability to relate to others, even the ability to have an opinion – they all decline.
What is a good day? Many people would say that a good day is when everything you planned works. No hitches. No slip-ups. And what does one do when there are hitches? Get frustrated, of course. Rant and rave. Find someone to blame. Typical, right? Very human.
He was eight years old. Third grade is a time for small boys to learn multiplication tables in the classroom and how to pitch a ball in the schoolyard. But Naftali* had learned neither of these. Instead he learned about IV’s and scary hospital equipment, about hair falling out and about roommates who ‘disappeared’ never to return. Naftali had cancer. The medical staff called his parents in for a meeting. There was only one recourse left: a bone marrow transplant. It would save his life but a genetic match would have to be found soon or… it may be too late. Jews will genetically match other Jews and so Ezer Mizion was contacted. Ezer Mizion’s registry with close to a million potential donors is the largest Jewish registry in the world, but, for Naftali, it was not large enough. There was no match. Continue reading L’chaim! To Life
“Good morning. Is this Mr. Hyman? I’m calling from the bone marrow registry. You have been found to be a match for a cancer patient!”
I was sitting in my office when I received that call. I had been tested sometime around 1998 and had not thought about that day in years. Then, quite literally, out of the blue, I was asked if I would be willing to go through further testing to confirm that I was a match for “the patient.”
My response was simple: tell me what to do!! The caller from the registry went through some basic info and made sure to tell me that while the procedure for me as a potential stem cell donor, was safe, it was still my choice and “are you sure you want to go through this process?” Continue reading So You Got A Call To Be A Stem Cell Donor?
34 transplants, 28 from donor pools 3,230 total transplants (of these 1,965 from the IDF) 985,186 members in registry (of these 544,281 from the IDF) Transplant Countries
Argentina, France, Germany, Israel, Italy, Netherlands, Spain, UK, USA
“His face lit up” – a phrase so often found in stories of someone who received something he never expected. What does it mean? How does a face light up? Surely it is the spirit inside him that is generating the electricity.
If that is the case, then joy would be the prescription to raise the spirits of those demoralized by serious illness. Rx: fun. Happiness and chemo working in tandem. Body and spirit together engaged in the battle for life.
Ezer Mizion’s Cancer Support Division incorporates this truism into its Battle Plan with fun days for mothers, trips for kids, birthday parties, make-a-wish outings and so much more.
Harel was a case-in-point. Close to his father, the two enjoyed doing things together. One of his father’s favorites was running. Feeling the wind, the rush of adrenalin, the flush of reaching the finish line. Pure joy. And sharing it together was the icing on the cake.
The Annual Petach Tikva Run was scheduled. His father was one of the first sign up. But this time, there’d be no young son beside him, sharing the elation. Harel longed to be there. Oh, how he longed to be there. But a monster had taken over his life in the form of an illness, curable only with a bone marrow transplant. The transplant had taken place recently and Harel was beginning to mend. But running? Out of the question!
Out of the question but feelings don’t ask questions. They just feel. And Harel was feeling miserable. An emotion not very conducive to strengthening his body.
Enter Yumi, one of the most beloved members of the Cancer Support team. Yumi never sees ‘no’. He just sees ‘how’. How can it be made possible for Harel to join the race together with his father? Nothing is simple when it comes to a transplant. But Yumi is used to that. He met with Harel’s father. Tossed out possible plans. Brought the plans to a meeting with physicians. Changed, refined, re-did. Met with the race organizers. Back to the physicians. And soon. There it was. A real plan. One that he hoped would work.
The day arrived and there is Yumi. As excited as Harel and his father. Video camera on hand, recording every moment. Cheering, cheering, cheering! The lanes are filled with runners. And there is Harel’s father also running, pushing a wheelchair in front of him. Grinning behind his face mask sits Harel absorbing the excitement in the air. They’re almost there. The finish line is in sight. They stop and Harel exits the wheelchair, stands behind it and begins to push. The wheelchair supports him. His father’s shouts support him. And Yumi’s continued cheering supports him. There he is crossing the finish line with the rest of them. Way to go, Harel!
Keep running, young man. Keep running until you reach the finish line, until you reach perfect health and can do all the things you long to do. We’re all behind you, cheering you on, Harel. Keep running!