WE HAVE PASSED THE THREE-THOUSAND MARK OF LIFE-SAVING TRANSPLANTS!
Bone Marrow Donor Registry Activity Summary as of Nov. 2018 33 transplants, 24 from donor pools 3,002 total transplants 949,284 members in registry Transplant Countries
Australia, Canada, France, Germany, Israel, Italy, Netherlands, Poland, Sweden, US
Donor Pool Countries
Brazil, Canada, Israel, UK, US
A web of relationships, tightly woven over decades. Strengthened with love and caring. Expanding in every direction. Ever increasing… more and more. Until one day when the center threads begin to fray. Eroded by dementia. Continue reading Holding Tight
Ezer Mizion, the largest Jewish registry in the world, has recently celebrated a major milestone. Because of you, our good friends and supporters, we have passed the THREE-THOUSAND mark of transplants. That’s three thousand patients whose lives were saved! Three thousand families who remained whole! Three thousand grandmas and grandpas, Mommies and Daddies and so many tiny, frightened children traveled in one fateful moment from agony to joy, fueled by the electrifying words: We have a genetic match!Continue reading Because of You!!!
At Ezer Mizion’s busy office, the phone does not stop ringing. At times, it is the ubiquitous telemarketing call. Other calls may be requesting information about the bone marrow registry. Some calls can be as brief as several sentences but leave the staff member stunned. Like this one received by Chani :
“Where were you 45 years ago? When my son needed a bone marrow transplant? I took my two daughters to be tested at UCLA but they were not a genetic match.” Then her voice faltered, “Before we could try more people, my son— my son—- my son died.” Her voice broke but she tried to continue speaking, “Where were you 45 years ago?! I want to give you a donation. Your organization is so important. I only wish it had been in existence 45 years ago. Perhaps he could have received a bone marrow transplant. Perhaps he could have been saved.” She was overcome by tears and hung up the phone. The pain of losing a child does not disappear, even after 45 yrs.
That’s why Ezer Mizion’s Bone Marrow Registry was founded. For people like this lady’s son. People with Jewish ethnicity who need a DNA match to save their lives. Ezer Mizion’s Bone Marrow Registry receives calls from oncology clinics around the world and has saved over 2900 lives with genetically matching donors from its 900,000 registrants.
Ryan Hyman, our National Director of Development, spent the day in Houston, Texas meeting with new Ezer Mizion friends at Congregation Beth Israel’s “Israel at 70: Reaching Out to the World” event. Ryan shared the Ezer Mizion story and showed a video of one of our bone marrow recipients meeting his bone marrow donor for the first time. The video was highly emotional but even more impactful was when Ryan introduced the bone marrow recipient who is a resident of the Houston community. Attendees were visibly moved as the recipient told his story and implored everyone present to support the important work of Ezer Mizion.
She looked lonely. Just sitting there on a park bench with her attendant day after day. I stopped for a moment on my way to work. We spoke. A brief chat each day that we both looked forward to. A warm spirit…an intelligent mind imprisoned in an eighty-two year old body. Erica needed more stimulation. Perhaps some board games to keep her mind active. A game partner who would love her and whom she could love.
I reached my office at Ezer Mizion Ashdod Branch. A message from a parent. The volunteer we had paired up for game therapy with her special needs child was not working out. I had had my doubts. Chagit was eager to volunteer and help others but I had not been sure as to how well she could relate to children. Her own childhood had been less than perfect and she was now living with a foster family. Hmmm. Perhaps…?
It was a perfect match. Chagit visits twice a week armed with games and professional advice from the Game Lending Library Division.a project of Ezer Mizion’s Geriatric Services Dept. Malka Hager Fitness Center. The foster family reports that Chagit is so much more fulfilled. The volunteering with Erica has worked wonders for her, boosting her confidence and self-image.
Dr. Agustin Yigdal Zbar, president of AMIA, the association of Jewish communal services in Argentina, together with Mr. Diego Emilio Salem, Deputy President of Argentina’s Jewish School Federations, recently visited Israel. The purpose of their visit was to rally Israeli government funding for a teachers’ training project in the Jewish communities in Argentina and for development of a new Health Services Division, to be housed in the AMIAJewish Community building in Buenos Aires. Continue reading AMIA Leadership Mission Visits Ezer Mizion
Some special needs children have very special parents indeed! Ayelet Sanens is a person of many facets. She is a pre-school teacher by profession who devotes hours to preparing the presentation of a concept to her tiny charges. She fully understands the educational benefit of breaking down ideas based on her vast experience with her special needs daughter, Tamar. Of an outgoing personality and a sense of responsibility, she is an active member of the community, initiating and supporting worthwhile communal functions. In addition, she tries to publicize, wherever she goes, the need to recycle household items to protect the environment. Often heard from Ayelet by her friends: ‘Don’t buy it unless you need it and, once you do buy it, recycle it when your family no longer has any use for it.’
It’s not often that all of these facets come together as they did in the recent Ashdod Environmental Preservation and Recycling Fair.
Aware of the many special needs children who can benefit from Ezer Mizion’s special summer program in Ashdod, she brainstormed and came up with an ‘out of the box’ idea of promoting her opinions on recycling to raise funds for these kids. Thus was born Ashdod’s amazing Environmental Preservation and Recycling Fair!
Items on display included toys, cosmetic products, costume jewelry, clothing, household items, and more, all tastefully and attractively arranged in booths.
The event brought the Ashdod residents closer together as they rallied to provide a much-needed communal program. In attendance at this charming event, in addition to the local residents, were the Education Department supervisor and other local municipal staff representatives.
The creative event was enjoyed by all, and the proceeds will be put to good use: helping to finance Ezer Mizion’s summer repertoire for Ashdod’s children with special needs. These children have been benefiting enormously from Ezer Mizion’s newly expanded program serving children with special needs in the local area and the surrounding region, under the able direction of Mrs. Estie Koenig.
Ezer Mizion has long been in the forefront of providing services for special needs children throughout the country. Ezer Mizion’s Beit Chana Activity Clubs provide supervision and constructive activity in four major cities in Israel for children with special needs after school hours, weekends and holidays.
Ezer Mizion’s training courses provide Developmental Aides with the fundamental concepts and techniques of speech, occupational and physical therapy, enabling them to provide this therapy under the direction of professionals. .Because early intervention is crucial for children with developmental difficulties, Ezer Mizion offers subsidized physical, occupational and speech therapy to children from birth through age eight. Through Ezer Mizion’s unique Developmental Aide program families are offered these therapy sessions at a minimal cost.
Ezer Mizion’s network of special needs summer camps has grown to include camps to service thousands of children with physical handicaps, brain damage, cerebral palsy, Down’s syndrome, autism, blindness, deafness and emotional disorders. For these youngsters, Ezer Mizion’s summer camps are the highlight of the entire year.
BONE MARROW DONOR REGISTRY ACTIVITY SUMMARY OCT. 2018
33 transplants, 25 from donor pools 2,969 total transplants 945,052 members in registry Transplant Countries
Austria, France, Germany, Israel, Italy, Spain, Switzerland, Turkey, USA Donor Pool Countries
Brazil, Canada, Israel, USA Continue reading Because of You!