The Journey We Didn’t Plan – Conclusion – taken from the diary of Nechama Spielman

diary Nechama Spielman
Diary of the anguish and terror permeating the planet called Cancer

So it goes, until April. The last treatment for  the cancer providentially comes out exactly on Yigal’s birthday, the second of Nissan (April). One more little note from Hashem (G-d) showing us that He is holding our hands.  Simply and unceremoniously, the old birthday links up with the new birthday, as we plead to live and rejuvenate and truly grow…

Enveloped by parents and all the loving siblings, who have surprised us and come, we take leave of the room that has become so familiar to us over the last few months. Together, we emotionally sing, “Even behind the tough things that you go through – I am standing there.” There are no mistakes in the world. Even when it is concealed from our view – we are being closely watched and cared for… Continue reading The Journey We Didn’t Plan – Conclusion – taken from the diary of Nechama Spielman

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A Journey We Didn’t Plan Part 3 of a 4-part Series taken from the diary of Nechama Spielman

diary Nechama Spielman
Diary of the wife of a cancer patient as she journeys through the nightmare that has overtaken her life

Recap: Nechama has been dealing with her husband’s cancer

Hodu La’Shem (thank G-d). The radiation treatments have helped a lot. The tumor has shrunk which qualifies us for surgery. The remarkable precision of the timing gives us a special feeling. We are slated to go in for surgery right after Rosh Hashanah and to come home for Sukkot. Continue reading A Journey We Didn’t Plan Part 3 of a 4-part Series taken from the diary of Nechama Spielman

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A Journey We Didn’t Plan Part 2 taken from the diary of Nechama Spielman

diary Nechama Spielman
Diary of the wife of a cancer patient as she journeys through the nightmare that has overtaken her life

We’ve landed. We’re now officially residents of the planet called Cancer. For the next few days, we move quickly from one test to the next, trying to obtain a clearer picture. We encounter the state of uncertainty and try to slow down the rapid beating of our heart, the heart that wants to know, to know right now – will he live or will he die? A ton of thoughts are running around inside my head, spinning out of control. Continue reading A Journey We Didn’t Plan Part 2 taken from the diary of Nechama Spielman

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A Journey We Didn’t Plan from Nechama Spielman’s Diary

diary Nechama Spielman
Our Journey through Planet Cancer

I remember exactly where I was sitting.

I remember the curious sun ray that peeked inside to see our new house, slid gracefully across the table, jumped down, gave the floor a luster, and flashed me a warm smile. Maybe it was trying to stroke my cheek, even before we ourselves knew that, just a few moments later, we would be needing just such a comforting embrace. Continue reading A Journey We Didn’t Plan from Nechama Spielman’s Diary

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They Were My Legs

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Devastated by sudden hospital admission

Chanah wasn’t feeling well. Even though she had a busy schedule that day, she walked to her doctor to see if he would have any advice or medication that would enable her to function better as she went about her myriad of activities. That was the last walk she was to take for a very long time. The doctor wasn’t sure as to what was wrong and sent her to the Emergency Room. She was soon to learn that she was suffering from cancer which affected her abdomen and spine. The next day, she was unable to walk at all.  Continue reading They Were My Legs

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Their Role/ Our Role

Volunteer Driver

I’ll admit it. I had a negative thought there for a moment. I picked up a woman at one of the major hospitals and drove her miles to the city in which she lived. For an instant, I couldn’t help wondering why she called for a volunteer. Couldn’t she have gone by bus?  She looked fine, spoke in an upbeat manner, even joked a bit. I’m happy to help people out. After all, that’s why I joined Ezer Mizion’s Linked to Life but from what I could see, I wondered if she really needed help. Continue reading Their Role/ Our Role

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We Need You Now!

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Rabbi Chollak offering his unique brand of support to tiny victims of cancer

A conversation with Rabbi Chananya Chollak, International Chairman of Ezer Mizion

For the Yamim Nora’im, Ezer Mizion has set out on a major fundraising drive to raise the money needed to finance scanning tens of thousands of stem cell samples, so as to expand its International Bone Marrow Donor Registry. Rabbi Chananya Chollak, the organization’s International Chairman, took the time to speak with us personally about the need for public support to fund lifesaving activities, to tell us about Ezer Mizion’s goals, and to convey a message to the public. Continue reading We Need You Now!

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Staff Guidance

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Cancer: imprisonment in a nightmare

Cancer is devastating. For the patient and for the whole family. A typical scenario involves a young mother. Her husband is traumatized. His world has collapsed. He is too young to even fathom the possibility of death. His wife is – was – vibrant, full of life. He can’t even utter the D- word. And amid the horror of grappling with what cannot – please, G-d, please –  will not happen, he also has to cope with homework, laundry, the full gamut of running a home.

 

And the kids? They are utterly confused, terrified to leave their home each day. Some will sleep in the hallway outside Mommy’s door somehow feeling that their presence will ensure Mommy’s being there in the morning. Others are afraid to step outside on the ground for fear of stepping on someone who has died. Guilt, anger, terror, dread, confusion all entangled inside a vulnerable, bewildered child. Continue reading Staff Guidance

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Opennnn!

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Lego-therapy infusing the child with hope, with continuance

Maor Cohen is known at Ezer Mizion as the Lego Man. He runs a workshop for kids with cancer and their siblings using lego as a medium enabling them to cope with their fears and anxieties. For those children who are unable to attend the workshops he makes hospital visits.  Always smiling on the outside, one cannot imagine where he finds the strength to continue his mission of chessed. Read on to share his thoughts.
Continue reading Opennnn!

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Building a Future

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building a future with lego

Love at first sight, that’s what Maor Cohen felt when he got his first Lego set at age five. “My Mom came home from a visit in Tel Aviv, the ‘big city,’ with a humongous Lego set that must have cost half her monthly salary. You have to understand that back then, in the beginning of the 1980’s, this was no trivial matter. I was so excited that I went to sleep at night hugging the box and the next day I couldn’t wait to come back from preschool and play with it.”

“From that moment, which remains vivid in my heart more than thirty years later, I never stopped developing my hobby. Every birthday present was Lego, and every bit of money I saved up as a child remained in my piggy bank until enough accumulated to buy a new set. I lived at the time in Yavneh and I would ride my bicycle all the way to Rechovot in order to buy Lego and save the cost of a bus ticket.”

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Fighting cancer with lego

Throughout his youth, Cohen never abandoned his hobby. But, of course, as he matured, his focus turned to adult occupations. He served in the army, completed an officers’ course, and today, after finishing his academic studies through the army, is serving as a Major in the Manpower Department.

One day, he recalls, after realizing that he had accumulated in his home an unimaginable amount of Lego, worth hundreds of thousands of shekels, he decided that it was time to pass the pieces on to somebody else who would enjoy them. “I wanted to do something good with the Lego. I turned to my friend, Rabbi Eitan Eckstein, who suggested that I donate the collection to Oranit, Ezer Mizion’s Donald Berman Rehab Center for Support of Cancer Patients and their Families.

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Taking a vacation from cancer.

When I arrived at Oranit, my plans changed. Drastically.  “I came there intending to simply donate the Lego and go my merry way. Oranit staff had a different idea. “Suppose you keep the Lego and use it for a club, showing the kids how to use it. You’ve got the skills. You’ve got the know-how. You could accomplish so much. You could put life into those kids (and maybe even adults). Dealing with cancer is frightening. It’s depressing. Having a project like Lego to look forward to would work wonders.”

“They were so convincing that I tried giving the workshop that very day. I recall hesitantly entering the playroom with a few pieces of Lego and three children and we started building. Well, it worked. The kids loved it.  Every week, the number of kids increased, and today there are almost thirty children participating.

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The LegoMan: He stoops to conquer

From that moment five years ago, Maor Cohen has been running the Lego Club in Oranit on a volunteer basis. With time, the project expanded. Others volunteered to assist him. Nir Solomon, who served as Cohen’s brigade commander in the past and is now retired uses his free time help Maor run the club. Four other volunteers also come regularly. Even Maor’s immense collection has its limits but many have been fascinated by the project and offered to help finance new Lego sets.  Maor’s brother is one of these. “He was very excited by the idea and asked to donate money so that I could buy the kids Lego as a gift. That would enable them to have Lego not only during the club time but also at home and with them during their treatments.”

Neither sun, nor rain, nor the security situation can deter the energetic Lego man. “The club is now in its fifth year, and it takes place once a week, no matter what. At most, I push it off a day, because I know that the child and his family are waiting for me. In addition to the club, I also make the rounds in the Oncology wards of the hospitals 3-4 times a week and build with the hospitalized children.”

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Fighting the fear of cancer with plans for the future

Why Lego? “First of all, Lego is great fun. I also think that it is especially important for these kids, because with Lego, there is a feeling of continuity. All that planning gives them a sense of a future.

Dr. Bracha Zisser, Director of Oranit, explains that Oranit was founded in order to relieve patients and their families during the difficult period of treatments. “We operate as a guest house that enables families to sleep over in the Center of the country near treatment centers to avoid the long, grueling hours of traveling. We also organize trips and social activities. In addition, we provide many forms of therapy for both patient and his family. We are constantly expanding our activities in order to enable every person, the patient or his family member, to connect with activities that speak to him.

Maor has got to know Oranit and its staff over the years.  “Oranit is an amazing place. They provide support in the most difficult moments, both to children who are sick and to children with a sick parent, and actually to the entire family, in the knowledge that the family is the circle surrounding the child.”

If you’d like to join the LegoMan in his humanitarian work, just click here and type lego into the memo field.

 

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