Medical science has made great strides with illnesses that, not too long ago, afforded very little hope for the patient. In some cases, even the ‘man on the street’ has become part of the remedy. Bone marrow transplants are a case in point. Bone marrow transplants have become the cure for a wide variety of life-threatening diseases ranging from many types of cancer to immunodeficiency syndromes and anemias.
In recent years, a bone marrow transplant has been proven to be the cure for a myriad of diseases. Many forms of cancer including leukemia andlymphoma in addition to other diseases such assickle cell anemia andSCID are only some of the life-threatening illnesses that have bowed to its power. Like penicillin, a bone marrow transplant can save lives. But unlike penicillin, it cannot simply be purchased at the local pharmacy.
Everyone dreams about it. Very few ever have the opportunity. I was one of those very few. True, I didn’t jump into the ocean and save a child from drowning or dash into a burning building to save a baby but I did save a life. A forty-year-old cancer patient had only one chance to survive—a bone marrow transplant. A genetic match is vital for success and I was that genetic match. An Ezer Mizion staff member asked me if I would do it. Would I do it???! How could I not do it?! How could I live the rest of my life knowing that because of a little discomfort, a little inconvenience, a young woman was prevented from living the rest of hers? Continue reading Saving a Life: The See-Saw Remains on Up
In her early sixties, Chava was a young grandmother to seven grandchildren. She was looking forward to many milestones in the future until she discovered that her future was very uncertain indeed. Twelve years ago, she had been diagnosed with lymphoma. A self-transplant of stem cells resulted in a cure and the nightmare seemed to be over until several years later the disease returned. Would there be a cure this time? Only if a transplant can be performed using the stem cells of a genetically matching donor. The procedure was not difficult but finding this mysterious donor whose DNA corresponded to hers seemed to be nothing short of miraculous. He could be any place where Jews of her ethnic group have settled…South America, Canada, US, Australia, Europe. Anywhere. The first step was to contact Ezer Mizion, the largest Jewish registry in the world with its database of over 800,000 potential donors. And, lo and behold, there he was, right there in Israel. Continue reading Watching the Grandchildren Grow Up…Together: A DNA Success Story
Avigayil has successfully trained many in public speaking as head of TED, a worldwide organization whose website attracts viewers that number into the millions. She is passionate about her profession and believes anyone can speak publicly if he is excited about his topic. One would assume that if Avigayil were to take the podium herself, Public Speaking would be her focus. But she says otherwise. “There is something I am even more enthusiastic about. In fact, if it were not for that subject, I would not be here today. What is it? It’s leukemia.
“I’m sorry. He won’t be back in the office until a week from Tuesday. Please call then.” A typical response. Professional. No complaints. We all understand that being out of the office means being unavailable for work-related matters and we don’t expect him to interrupt his golf game or his very important meeting in China to answer our questions. However, when it comes to saving a life, Ezer Mizion will not accept such a response. What happened? Here’s the story.
Ezer Mizion’s Bone Marrow Registry has saved the lives of over 2000 patients around the globe. Recently, a call came in from Schneider’s Hospital that a six year old child needed a transplant as soon as possible. Is there a genetic match available? A search was done. Success. Among the 800,000 registrants on the database, an excellent DNA match was found. The potential donor was contacted. She’ll be happy to donate but there’s one problem. The next level of testing must be done asap and she is currently in Brno in the Czech Republic. “Can I make an appointment with the lab for when I return in a few weeks?” A natural response. Polite. Professional. The Ezer Mizion staff member could simply note on records: Donor out of country. Testing will be done when returns. The file would then be closed pending her return. The patient? Perhaps his condition would still be such that he can benefit from the transplant. Perhaps not. Ezer Mizion was not going to take that chance.
Linked to Life, another division of Ezer Mizion that utilizes a What’s App program to make vital contacts worldwide, was called. Thousands of screens lit up while the test tubes were being prepared. ‘We need a volunteer to drive vital test tubes from Petach Tikva to the airport in Tel Aviv to meet someone going on the 3:50 flight to Vienna. In moments, a volunteer responded and the tubes were on their way. While he was driving, screens lit up again looking for someone scheduled to be on the flight to take the tubes. Bzzzz. Responding. Am at airport at Gate 123. I’ll take it. Another Linked to Life volunteer was waiting at the Prague airport and drove the package to the Chabad House. The head of the Chabad House drove through the night to Brno and used his contacts to have the clinic opened in the middle of the night to draw blood from the potential donor. More clicks while the now-filled test tubes were making their way back to Brno. Anyone traveling from Prague to Israel on next flight? By the next morning, another Ezer Mizion Linked to Life volunteer was waiting in the airport at Tel Aviv to transport the tubes to the Bone Marrow Registry in Petach Tikvah. Less than twenty-four hours. Mission accomplished.
Living in the US and like to join Linked to Life? SMS: 011 972 52 580 8936
Further inquiries that have reached Ezer Mizion regarding Adam Gomon, we wish to clarify that Ezer Mizion did a donor recruitment drive for Adam Gomon in August 2016 in his specific ethnic community, where the likelihood of finding a match is the greatest.
All the people who joined the registry at Ezer Mizion’s drive for Adam were tested and their tissue typing data has been entered into our registry, available for Adam and patients around the world who are seeking a matching stem cell donor.
We are gratified to announce that a matching stem cell donor has been found for AdamGomon in Ezer Mizion’s registry. The donor is a 90% match, which is a sufficiently high match that can lead to a successful transplant when Adam’s transplant team will choose to proceed with the transplant.
In addition, every month Ezer Mizion tests an average of over 4,000 IDF recruits who join our registry as part of their induction into the Israeli army. Each passing month brings expanded donor opportunities from among the new IDF recruits that join Ezer Mizion’s registry, which might lead to an even better match for Adam.
Ezer Mizion’s firm commitment is to test every single sample that is given by new potential stem cell donors who join our registry. The donor recruitment drive for Adam for which thousands of samples remain untested, has no connection to Ezer Mizion.
The bone marrow transplant was over. There she sat blowing bubbles for her pre-schooler. Together with several neighborhood children, he ran after them on his chubby legs reaching out to touch the effervescent, multi-hued balls of magic, then watching, mesmerized, as they mysteriously made their way, flying up, up, up to never-neverland.
Young children are fascinated by bubbles. Yet certainly no child would want to live in one. As her tiny son ran on the grass with his little friends, she offered up a fervent prayer of gratitude. Up until recently, her son was called the Bubble Baby. He was forced to live in a virtual ‘bubble’, a completely sterile environment, to save his young life. Continue reading A Bone Marrow Transplant for The Bubble Baby