Ezer Mizion’s Linked to Life: The Beeps Keep Coming

Linked to Life: We’re all connected!

We all remember what Purim was like. That special electricity in the air as we rush from house to house sharing treats and Purim joy. In the center of the Avenue, a rabbit dances with a lion to bouncy Purim tunes. On the next block, a miniature Mordechai gleefully rides a pony while being led by “Haman” announcing to the world, “Thus shall be done…” Many of Ezer Mizion’s  Linked to Life volunteers add another dimension to their holiday festivities by granting Purim wishes to people in need. Continue reading Ezer Mizion’s Linked to Life: The Beeps Keep Coming

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Special Purim Fun

clown 2Special children are unique. Their abilities are unique. Their understanding is unique. Their needs are unique. Should that mean that they cannot participate in the joy of Purim, a day that is often termed ‘the children’s holiday’?  is it possible to create a unique Purim atmosphere, geared especially for them?

A ‘Special’ Purim carnival? Continue reading Special Purim Fun

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Ezer Mizion Partners with Chemdat Hadarom for Special-Needs Children

pr summer‘Each child is born with its unique value. It’s up to society to ensure that his development enables him to succeed to the limits of his potential.’ Thus spoke Naftali Bennet, Minister of Education in Israel at the ground-breaking ceremony of the Master’s Program at Chemdat Hadarom. Continue reading Ezer Mizion Partners with Chemdat Hadarom for Special-Needs Children

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Because of You!

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FEBRUARY 2017 – BMDR ACTIVITY SUMMARY
24 lifesaving transplants
13 from personalized donor pools
2,401 total transplants
846,694 members in registry

bmr 2 17 cBelow are the donor pools that saved lives this month, and their total transplants. Continue reading Because of You!

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The Bas Mitzvah That Almost Wasn’t

pr whats app  Bas Mitzvah cakeIf you’re like most people, your mental wastebasket is filled with great ideas that didn’t happen. You meant to get to it. You really did. But ‘life’ got in the way. Things were busy that month and it fizzled and died. Maybe someone else could have done it but offhand you didn’t know anyone to ask. And so it joined the many other ideas waiting for ‘someday’.

But this one couldn’t wait. It had to be done now. Continue reading The Bas Mitzvah That Almost Wasn’t

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Czechoslovakia? No problem…

helping-hands“I’m sorry. He won’t be back in the office until a week from Tuesday. Please call then.” A typical response. Professional. No complaints. We all understand that being out of the office means being unavailable for work-related matters and we don’t expect him to interrupt his golf game or his very important meeting in China to answer our questions. However, when it comes to saving a life, Ezer Mizion will not accept such a response. What happened? Here’s the story.

Ezer Mizion’s Bone Marrow Registry has saved the lives of over 2000 patients around the globe. Recently, a call came in from Schneider’s Hospital that a six year old child needed a transplant as soon as possible.  Is there a genetic match available? A search was done. Success. Among the 800,000 registrants on the database, an excellent DNA match was found. The potential donor was contacted. She’ll be happy to donate but there’s one problem. The next level of testing must be done asap and she is currently in Brno in the Czech Republic. “Can I make an appointment with the lab for when I return in a few weeks?”  A natural response. Polite. Professional. The Ezer Mizion staff member could simply note on records: Donor out of country. Testing will be done when returns.  The file would then be closed pending her return. The patient? Perhaps his condition would still be such that he can benefit from the transplant. Perhaps not. Ezer Mizion was not going to take that chance.bmr tubes

Linked to Life, another division of Ezer Mizion that utilizes a What’s App program to make vital contacts worldwide, was called. Thousands of screens lit up while the test tubes were being prepared. ‘We need a volunteer to drive vital test tubes from Petach Tikva to the airport in Tel Aviv to meet someone going on the 3:50 flight to Vienna. In moments, a volunteer responded and the tubes were on their way. While he was driving, screens lit up again looking for someone scheduled to be on the flight to take the tubes. Bzzzz. Responding. Am at airport at Gate 123. I’ll take it.  Another Linked to Life volunteer was waiting at the Prague airport and drove the package to the Chabad House. The head of the Chabad House drove through the night to Brno and used his contacts to have the clinic opened in the middle of the night to draw blood from the potential donor. More clicks while the now-filled test tubes were making their way back to Brno. Anyone traveling from Prague to Israel on next flight? By the next morning, another Ezer Mizion Linked to Life volunteer was waiting in the airport at Tel Aviv to transport the tubes to the Bone Marrow Registry in Petach Tikvah. Less than twenty-four hours. Mission accomplished.

Living in the US and like to join Linked to Life? SMS: 011 972 52 580 8936

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Clarification: Adam Gomon

Further inquiries that have reached Ezer Mizion regarding Adam Gomon, we wish to clarify that Ezer Mizion did a donor recruitment drive for Adam Gomon in August 2016 in his specific ethnic community, where the likelihood of finding a match is the greatest.

All the people who joined the registry at Ezer Mizion’s drive for Adam were tested and their tissue typing data has been entered into our registry, available for Adam and patients around the world who are seeking a matching stem cell donor.

We are gratified to announce that a matching stem cell donor has been found for Adam Gomon in Ezer Mizion’s registry. The donor is a 90% match, which is a sufficiently high match that can lead to a successful transplant when Adam’s transplant team will choose to proceed with the transplant.

In addition, every month Ezer Mizion tests an average of over 4,000 IDF recruits who join our registry as part of their induction into the Israeli army. Each passing month brings expanded donor opportunities from among the new IDF recruits that join Ezer Mizion’s registry, which might lead to an even better match for Adam.

Ezer Mizion’s firm commitment is to test every single sample that is given by new potential stem cell donors who join our registry. The donor recruitment drive for Adam for which thousands of samples remain untested, has no connection to Ezer Mizion.

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A Bone Marrow Transplant for The Bubble Baby

pr bmr Inbar Ronen - bubble baby- w out mother ok to use
A bone marrow transplant gave me a future!

The bone marrow transplant was over. There she sat blowing bubbles for her pre-schooler. Together with several neighborhood children, he ran after them on his chubby legs reaching out to touch the effervescent, multi-hued balls of magic, then watching, mesmerized, as they mysteriously made their way, flying up, up, up to never-neverland.

Young children are fascinated by bubbles. Yet certainly no child would want to live in one. As her tiny son ran on the grass with his little friends, she offered up a fervent prayer of gratitude.   Up until recently, her son was called the Bubble Baby.  He was forced to live in a virtual ‘bubble’, a completely sterile environment, to save his young life.  Continue reading A Bone Marrow Transplant for The Bubble Baby

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Because of You!

website bmr update template

 

 

January 2017 – Bone Marrow Donor Registry Activity Summary

 

27 lifesaving transplants

12 of them from personalized donor pools

2,377 total transplants

843, 373 members in registry

 

bmr 1 17 16508080_798750436944561_1670055473141759450_nOf these, 12 were made possible by funding from personalized donor pools. Continue reading Because of You!

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