Special Children/Special Parents

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Jeeping at Ezer Mizion’s summer Camp for Special Children

Some special needs children have very special parents indeed! Ayelet Sanens is a person of many facets. She is a pre-school teacher by profession who devotes hours to preparing the presentation of a concept to her tiny charges. She fully understands the educational benefit of breaking down ideas based on her vast experience with her special needs daughter, Tamar. Of an outgoing personality and a sense of responsibility, she is an active member of the community, initiating and supporting worthwhile communal functions. In addition, she tries to publicize, wherever she goes, the need to recycle household items to protect the environment. Often heard from Ayelet by her friends: ‘Don’t buy it unless you need it and, once you do buy it, recycle it when your family no longer has any use for it.’

 

It’s not often that all of these facets come together as they did in the recent Ashdod Environmental Preservation and Recycling Fair.

Aware of the many special needs children who can benefit from Ezer Mizion’s special summer program in Ashdod, she brainstormed and came up with an ‘out of the box’ idea of promoting her opinions on recycling to raise funds for these kids. Thus was born Ashdod’s amazing Environmental Preservation and Recycling Fair!

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Ahdod Recycling Fair to Benefit Ezer Mizion’s summer Camp for Special Children

Items on display included toys, cosmetic products, costume jewelry, clothing, household items, and more, all tastefully and attractively arranged in booths.

The event brought the Ashdod residents closer together as they rallied to provide a much-needed communal program.  In attendance at this charming event, in addition to the local residents, were the Education Department supervisor and other local municipal staff representatives.

The creative event was enjoyed by all, and the proceeds will be put to good use: helping to finance Ezer Mizion’s summer repertoire for Ashdod’s children with special needs. These children have been benefiting enormously from Ezer Mizion’s newly expanded program serving children with special needs in the local area and the surrounding region, under the able direction of Mrs. Estie Koenig.

Ezer Mizion has long been in the forefront of providing services for special needs children throughout the country. Ezer Mizion’s Beit Chana Activity Clubs provide supervision and constructive activity in four major cities in Israel for children with special needs after school hours, weekends and holidays.

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Special Needs Kids Visiting the Kosel and Pouring Out their Heart in a Very Special Way

Ezer Mizion’s training courses provide Developmental Aides with the fundamental concepts and techniques of speech, occupational and physical therapy, enabling them to provide this therapy under the direction of professionals. .Because early intervention is crucial for children with developmental difficulties, Ezer Mizion offers subsidized physical, occupational and speech therapy to children from birth through age eight. Through Ezer Mizion’s unique Developmental Aide program families are offered these therapy sessions at a minimal cost.

Ezer Mizion’s network of special needs summer camps has grown to include camps to service thousands of children with physical handicaps, brain damage, cerebral palsy, Down’s syndrome, autism, blindness, deafness and emotional disorders. For these youngsters, Ezer Mizion’s summer camps are the highlight of the entire year.

Fifteen thousand hostings by respite programs and twenty day care centers for children are more of  the many ways Ezer Mizion attempts to increase the child’s chances of reaching his full potential and to alleviate the plight of families dealing with special needs.

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Because of You!

website bmr update template

 

 

BONE MARROW DONOR REGISTRY ACTIVITY SUMMARY            OCT. 2018

bmr 10 18 c
Saving a life via stem cell transplant
bmr 10 18 b
Saving a life via stem cell transplant
bmr 10 18 a
Saving a life via stem cell transplant

33 transplants, 25 from donor pools
2,969 total transplants
945,052 members in registry

Transplant Countries
Austria, France, Germany, Israel, Italy, Spain, Switzerland, Turkey, USA
Donor Pool Countries
Brazil, Canada, Israel, USA Continue reading Because of You!

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It Was a Hard Week

candle
Losing the battle

We speak of it as being a ‘battle with cancer’. Like all battles, it requires an army, each division with its special task, each soldier with a mission to which he devotes his heart and soul. Each ‘soldier’s very being becomes linked to those he helps. Help comes in many different forms.  Therapy, living quarters near the clinic, meals, rides. The list goes on and on. This is no 9-5 job where work-related info disappears from the employee or volunteer’s radar as he exits the office.

 

Shopping for his family at the supermarket, Avi, an Ezer Mizion Linked to Life volunteer,  spots a candy bar that little Yossi likes and, with an unmanly sob, he adds it to his cart. (Yossi’s Mommy used to buy him that candy every Sabbath but now Yossi’s Mommy is …) His phone rings and the shopping cart gets shoved into a corner. The store manager will understand. It’s happened before. His wife will surely understand. She had been tearfully praying when he left the house. It’s Moshe. He needs a ride to the hospital.  Now. They just called. His wife has only hours to live. He knew it was coming but when it does…oh,  it’s so hard. He will be needed for much more than the ride. He and his fellow Linked 2 Life members had supported the family in so many ways for months. “Hashem, give him strength,” he fervently prays as he rushes to his car.

 

Many weeks are filled with joy like when a child wins his battle with leukemia and L2L members drive the family and accumulated paraphernalia home from the hospital.  Soon the child will join his friends in their games, a boy like any other boy. A celebratory parade as they enter the home, each one carrying packages, almost dancing up the stairs. Or when we’re invited to a bris by a young father who had been afraid his baby would be named after him. He’s cured now. The nightmare is over.

 

Other weeks are not so. Like this past one. Ora died this week. She had been part of the lives of so many Linked to Life volunteers in Rechasim and Haifa. Her conversation was never about her pain, her anguish. It was only about how grateful she was to each person for everything done for her family.

“Mere words cannot express my thanks to you for all your help and support. Hashem, in His great compassion and immeasurable love sent me such special agents as yourselves. I bless you all from the bottom of my heart that Hashem should repay you in kind, grant you health, happiness, and success in all your endeavors and nachat from the children. May good and kindness pursue you your entire lives.”

These words were written to Ezer Mizion just a few months ago by Ora a”h.

We rallied. We tried to smooth the way for them, do the little extras to bring some sunshine into their numbered days together. The medical staff fought hard. We fought hard to keep up their spirits. And we lost. Ora is gone.  Ezer Mizion will be there for the family, with the practical, with the emotional as long as we’re needed. We’ll be their cushion, their pillar.

It was a hard week.  There was a family at Ezer Mizion’s Summer Camp whose mother spent the time in bed on pain killers, under the supervision of medical staff, coming out for meals and some low-key activities. How gratifying to have been the catalyst for fortifying the family as they shared an enjoyable time together… their last. A day before camp ended, the mother was hospitalized. The children stayed on to finish camp. Ezer Mizion was with the children when they were told the bitter news of their mother’s demise. The younger ones hugged each other in a bundle of grief and said: “Ezer Mizion will help Abba and us. They never leave us to be alone!”

 

It was a hard week. A single mother of young children. Another young mother. And a sixteen year old boy with a brain tumor. Four young mothers and one young boy in one week.

 

Hashem, please give all of us at Ezer Mizion strength to be their strength. And Hashem, please hold them tight in Your embrace. Hug them. Comfort them. And wipe away all their tears.

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Because of You!

website bmr update template

 

 

BONE MARROW DONOR REGISTRY ACTIVITY SUMMARY            OCTOBER 2018

bmr 10 18 c
Saving a life via stem cell transplant
bmr 10 18 b
Saving a life via stem cell transplant
bmr 10 18 a
Saving a life via stem cell transplant

33 transplants, 25 from donor pools
2,969 total transplants
945,052 members in registry

Transplant Countries
Austria, France, Germany, Israel, Italy, Spain, Switzerland, Turkey, USA
Donor Pool Countries
Brazil, Canada, Israel, USA Continue reading Because of You!

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It’s For Real

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Cancer Support: soothing the pain

pr tfillin All he wanted was to celebrate his Bar Mitzvah with Ima….   But his mother is a cancer patient. It’s bad. The top doctors have given up on finding her a cure… They say it’s just a matter of days. And the boy? He didn’t want to be an orphan before his Bar Mitzvah! His only wish: to have his mother at his side on his Big Day. A wish so small… but so out of reach.

💔 A wish that tears the heart to pieces. A heart that can only be made whole again by someone who has within him a giant heart – big enough to encompass a young boy’s pain.

♥ Moishy B, an Ezer Mizion volunteer is such a man whose heart beats with irrepressible, boundless chessed. Work schedules, personal errands all fell by the wayside as he devoted the day to bringing the boy to the homes of gedolei Yisrael (Jewish leaders) to get their blessing in honor of the simchah. Touching the greatness of our gedolim, being soothed by their words of compassion helped heal a heart torn asunder.

📖 Together, they traveled to Jerusalem to daven (pray) at the Kotel and even had a tour of the Kotel Tunnels, specially produced by another Ezer Mizion volunteer, our Man of Action – Moishy H.

🎁 And to top things off (after all, he’s only a young boy)… a bag of gifts and perks organized by Ezer Mizion’s  warm-hearted Mrs. M.

bandaged heart  Ezer Mizion ­– we’re there when it hurts. It’s not just a slogan. It’s for real!

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Cancer Support: soothing the pain
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Let’s Start All Over Again

Ezer Mizion’s Judith Pfeuffer Day Care Network, serving the special pe-schooler

Sara* was not adjusting. As a special child, her parents had dealt with numerous issues but Orientation Day  marked what they hoped would be a new beginning. “Ezer Mizion’s Day Care has experience with children like her. Their staff is professional. For sure, they’ll have the key to help her.” With the tremendous burden of #raising a special child now shared, they felt a weight being lifted off their own frail shoulders.

But it didn’t happen. Sara displayed extreme social anxiety and various other challenges. Her teachers tried but she was not moving forward. Each day Mommy found it harder and harder to send her off to school with a hopeful smile. It was so difficult to face but face it they must. Their precious child was not succeeding. To others she may appear to be a special needs child, doomed to failure. But to her parents, she was everything. A mighty wave of love for this child would overpower them but the daily reports threatened to topple their last hopes. Continue reading Let’s Start All Over Again

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Strike A Match

pr weddingAlone. In a virtual corner, separated from their peers, feeling ostracized, not quite as valued. One by one, their friends become engaged but they remain.

They have so much to offer. So much to give to a relationship. Yet people shy away from the marriage. Fearful of the unknown. Continue reading Strike A Match

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Lost??!!!

AirplaneThe logistics were endless. But the trip was important to him. Not that many years ago, before he became a victim of Parkinson’s disease, a trip would have involved not much more than packing a carry on the night before. He didn’t need much. Now things were different. Some members of his family didn’t want him to go. They were afraid. What if something went wrong? Arrangements were made for every detail. They planned and re-planned. He wanted so much to go and so his family rallied and tried to smooth out all the bumps.

 

“Goodbye. Have a safe trip! Goodbye! Goodbye!” They all gathered at the airport to see him off. They weren’t too worried. They had covered everything. “He’ll be fine,” they told themselves.

 

suitcaseThe trip was uneventful. It wasn’t until they disembarked that the bump came. A big one. He checked the monitor and made his way to the appropriate carousel. It was the first time he hadn’t used a carry on. The Parkinson’s made that too difficult.  “It’s the green suitcase with the black stripe,” he told the person helping him. Suitcases flew out. All colors. All sizes. But not his. He made his way to the agent and handed over his baggage papers. He waited while the agent checked his database, made some calls, checked again. “I’m sorry, sir. It’s lost. Please fill out these forms and you will be reimbursed.” He just stood there stunned. Lost? The shirts could be replaced. But his medication! His medication he must have! He only has enough for about half a day. All those pills. So many kinds. How could he ever replace them in a different country?!

 

Suddenly he felt old. Too old to have made the trip. His family had been right. He never should have gone. He sat down on the nearest chair. Helpless. The ringing of his phone broke into his melancholy thoughts. “Hi. How was the trip? Everything ok?” Nothing was ok. “Wait, Abba. We’ll work things out. You’ll see. Everything will be fine.”

 

Airport_Seating_SolutionsHe didn’t see how that could be but, having no emotional energy to even stand up, he remained there on the bench.

 

Meanwhile, his son got to work. One family member was sent to the pharmacy to procure a whole new set of medication, complete with all legal paperwork. Another was given the job to find someone who could take it from Israel to the US. Calls were made and many people suggested calling Ezer Mizion’s Linked to Life Network.

 

The following post went up on Linked to Life at 8:32:

Urgent request! An Israeli with Parkinson’s disease flew to NY and lost his suitcase with all his medications! Family desperately looking for someone to bring new meds from Israel to NY.

At 8:35, just three minutes (!!) later: Delivery to New York has been arranged! A giant thank you to all our partners!

 

Still despondent, still sitting on his bench, he answered the ring on his phone. “What??? But how??? You say tomorrow morning???? Really???” With a spring in his step, he rose from the bench feeling ten years younger. It was going to be a great trip!

Like to join Linked to Life? SMS: 011 972 52 580 8936

 

 

 

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Because of You!

website bmr update template

 

 

September 2018 – BONE MARROW DONOR REGISTRY ACTIVITY SUMMARY
27 transplants, 17 from donor pools
2,936 total transplants
943,861 members in registry
bmr 9 18 dbmr 9 18 bbmr 9 18 c bmr 9 18 f

bmr 9 18 g

 

 

 

 

 

 

 

Transplant Countries
Austria, Canada, Germany, Israel, Italy, Spain, USA

Donor Pool Countries (see below)
Brazil, Canada, Israel, UK, USA Continue reading Because of You!

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Dementia: Us and Them

confusion
Confusion of early stages of dementia

We all have met up, at some time or other, with people suffering from Alzheimer’s and other forms of dementia. Seeing their inability to function independently is frightening. We look at them and their family members with compassion. But that’s them. We are we. We are not members of that club. The Dementia Club. We chuckle a bit the next time we forget our keys but we know it’s normal. Certainly not a sign of the D-word.

And then one day, Chaya, a perfectly normal woman, your neighbor, the one you went shopping with a couple of weeks ago. The one who helped you out your washing machine broke. That neighbor whom you’ve shared your woes in raising your kids as you both waited for their school bus each morning  – she said something strange. It wasn’t the first time. You glanced up at her and were shocked to see that her face looked different – confused, helpless. Continue reading Dementia: Us and Them

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